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Tuesday, December 21, 2010

Got ghastly sick last week. Went to my doctor and once again I got the viral flu going
around as well as a nasty bug in my bladder (charming). 
Quite bad this time around so I was given 2 different rounds of antibiotics and I
seem to ben slowly feeling human again.
Seems as if my immune system has just about had enough.
I'm having chemo done on the 23rd of December - sincerely hoping I won't be 2 much out of it.
I hope everybody is enjoying the Christmas holidays - to those of you who are off - lucky you!!
I wish you all a blessed christmas with many special moments filled with love and happiness :)

Sunday, December 12, 2010

Not too much 2 say today -
Just watched a movie called "Living Proof" which is based on a true story about a man named Dr. Dennis Slamon who invented the miracle drug I am on "Herceptin". It's about the amazing way in which this doctor takes 12 years to have his drug approved and about the various women who are chosen for this special trial. Pretty amazing stuff but it also hits home a bit on how serious my whole matter is. It just seems so surreal...yes. still....believe it or not.

Friday, November 26, 2010

More Great News

For those of you who are unaware - I had my 2nd CT scan done last Tuesday. Results are positive - another reduction of 30%  :)  with my first CT scan I lost 42%...unfortunately these 2 percentages cannot be added together for a magnificent result that one can only dream of. In true fact I am about 52% in the clear instead. I wish I had a magic wand (or at least knew of somebody who owned one) to just make it all go away. How amazing would it be to hear the words 'You are in the clear!"

To sum up my overall measurement of my cancerous leisions it originally measured 165.4mm. It now measures 81.8mm :)

My doctors feel that I am doing really well on the treatment. They think I am coping amazingly well and might just put me on an extra 2 months of treatment just so I can get better results seen that I am responding so well. I hope and pray with all my heart that it works!! It really has become a weekly routine and it is extremely tedious but I am up for anything to make me feel better :) I seem to be part of the furniture now in the oncology department.

I am feeling an unusual symptom of tight chest/ weazing. Hoping it all goes away because it's making me suffer in the sleep department! 

I feel like I'm kind of getting away alot easier than what other patients are going through. About a month ago 2 new people started. The one girl I barely recognised because she dosn't have a hair on her head and the other lady is now in a wheel chair because her strength is so bad. I know my chemo is a bit milder than what the others have but wow - it's quite a reality check. I almost feel as if the severity of my cancer isn't real. Is it really that advanced?

I can't believe we are nearing the end of year already - where on earth has the year gone? could it be that 4 months of treatment have gone by so dam fast already?












Tuesday, November 16, 2010

It's been a while since I have updated my blog - I keep getting reminded by certain 'followers' :p 
I had a bad reaction last week during my chemo session. Sincerely hope that doesn't happen again! Not quite sure why It happend but I was fine on my rechallenge again. Thank goodness...
I am having my next scan done on the 23rd of this month - I am soooooo nervous. Can only hope that the  progression continues as good as the results were the last time. Cross your fingers and toes everybody - I will do nothing but POSITIVE thinking over the next week! If I am on nerve it's really because I'm as nervous as hell for the next set of results...

For all the men supporting 'Movember' - Good on you all :) I think next year we should have a competition going on to support men with prostate cancer.

Monday, November 1, 2010

onward we go

Ok - so the hair is still there. It seems that every week my one specific trial doctor will walk up to me in utter amazement and gasp that my hair  is still there. Yay me!

So lately I  have been thinking about everything I have gone through since being diagnosed. I try to stay on the positive side of things but my mind seems to waft back to the idiot in the white coat who misdiagnosed me. Everyone says that it's extremely hard to sue doctors about misdiagnosis but then I think about it-  my mom who is a medical technologist at a blood bank for Western Provice - everyday she has the stresses of losing her job if she makes a mistake of giving out the wrong blood or not double checking up after herself on the records etc How is this different!? I trusted this doctor would put my mind at ease to something that was 
clearly a worry for me. If the cancer had been discovered I could easily be over it all right now and it wouldn't have spread to my liver. I think I have decided that towards the end of my treatment I am going to investigate such cases like mine. If anybody has had a personal experience in this (or you have heard of such stories) the advice would be much appreciated :)

My better half asked me the other day if I think I have changed since going through the whole ordeal. In many ways yes but I think I still have quite a journey to go. I find I am even more calm than what I was and I don't let the silly things bug me like they usesd to. I walk away before an argument event starts and another huge aspect is an urge to help people in a similar situation to me. I just want to help and go the extra mile for the people who deserve it. Especially the people in my life who love and support me so much.

Love you guys!

Thursday, October 21, 2010

{insert swear word here}

I fear I am not a 'robocop' and infact my hair is thinning out Beeeeeeeg time. I comb my hair every morning with the utmost precautions over the sink and every morning I swear infront of the mirror hoping it's just my hair thinning and not actually falling out. 'Maybe just maybe it'll stop doing this' I tell myself. 3 months later seems a bit delayed compared to the normal 'after one treatment'. Suppose if it happens it happens but a young womens hair is more than you think. The silver lining : goodbye damaged hair hello healthier hair???? ...Always trying for a positive side. I tried :p
On another note I am starting on my 4th cycle of treatment (every month is a cycle) but I think my body (and hair) is starting to feel it now. I feel more and more tired lately and I'm finding I need my naps - can't concentrate to save my life either it seems when I reach mid day.
Have a good weekend all :)

Friday, October 15, 2010

and so it continues...

I got a bit of a surprise yesterday when at treatment. It turns out it's not 3 months long but 6 instead! 
The trials department seems a bit confused and now I will be continuing the 'journey' to get better..
I'm definately not against it because I am certainly hoping that it 'zaps' the rest of the cancer away but it does leave me a bit worried about work. I am only working 3x a week and I am basically out of leave by now. It's a bit worrying but it's the least of my worries I suppose...
Feeling good today - just a bit drained so doing stuff from bed and listening to some good tunes...